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| The Unknown possibilities |
What I know today.
There is a fork in the road ahead. If I go one way, I get a stem cell transplant. If I go the other way, I get CAR T-Cell Therapy. These are options, I do not get to choose. One is not better than the other. It works like this.
If I am chemosensitive, meaning the cancer is responsive to this chemo, then we continue until I am as cancer free as possible, and I a get stem cell transplant. To get a stem cell transplant(auto), your body has to be disease free, as they harvest your stem cells to later infuse back into your body.
If I am chemorefractory, meaning the cancer is not responsive to chemo, then I would go the CAR T-cell therapy path. This is a type of immunotherapy. Up until March 5, 2021 I would have only been able to get into a clinical trial which I would have qualified for by having had two lines of treatment that failed. However, on March 5th, the FDA approved CAR T-Cell for patients with Follicular Lymphoma (what are the odds of that happening). With this, they harvest your T-cells and re-engineer or genetically modify them to fight only lymphoma. Then they return them to your body, and they fight the cancer - science is just fucking amazing!
Monday, April 19th - I will have the Petscan to find out which of the above I am. Then I will know more about which way this road will bend...I have done research on both. They both require at least a three-week hospital stay. They both have side effects. They both have success rates. Every "body" is different.
I am going to leave it at that. I have learned an incredible amount of information. I am now watching scientist and doctors webinars from all over the country. The Internet is awesome! You wonder why I have anxiety, haha - no just kidding - for me, knowledge is power.
Below are some resources/videos for those interested in knowing more.
Stem Cell Transplant and/or CAR T-Cell Therapy.
Stem Cell Transplant (Autologous) - PDF with more information
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| The body is a wonderland! |
CAR T-Cell Therapy - PDF with more information
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| Science is amazing! |
Science is incredible. Keeping you in my thoughts and prayers for some positive answers! Xo -Sara
ReplyDeleteThanks Sara.
DeleteDear Jenith - I so loved our walk the other day, we need to keep doing these. Waiting to hear your next results and keeping you in my heart! Slog, crawl, drag forward is the only thing we can do. Love you.
ReplyDeleteI loved seeing you too. Definitely need to keep doing that. Keep me posted on you too. π❤️ Xoxo
DeleteI read “Both have success rates” ❤️ So glad to hear the law changed just when you needed it. I hope the anxiety and stress is manageable. Xoxo. Love you.
ReplyDeleteπ xoxo
DeleteThanks. I am very lucky science is so amazing.
ReplyDelete❤️❤️
Continuing my positive, healing, love-filled prayers for you and giant thanks for the amazing scientist!!!!
ReplyDeletethank you! π the science is truly amazing. Scary but amazing! π
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